My Journey to Dysautonomia
I didn’t wake up one day and get diagnosed with dysautonomia.
It was more like… my body started leaving clues years ago, and I kept collecting them like puzzle pieces I couldn’t make sense of yet. Some were loud. Some were subtle. Most were brushed off. And for a long time, I learned to live in the in-between… the space where you know something is wrong, but you can’t prove it in one appointment.
The early years… when “tired” wasn’t just tired.
I’ve had asthma since I was a kid, so “breathing stuff” was always part of my life. But as I got older, it wasn’t just my lungs. It was fatigue that didn’t match my life. Pain that moved around. GI problems that were hard to explain. Days where I felt like I needed multiple naps just to function…
My Journey to Dysautonomia
I didn’t wake up one day and get diagnosed with dysautonomia.
It was more like… my body started leaving clues years ago, and I kept collecting them like puzzle pieces I couldn’t make sense of yet. Some were loud. Some were subtle. Most were brushed off. And for a long time, I learned to live in the in-between… the space where you know something is wrong, but you can’t prove it in one appointment.
The early years… when “tired” wasn’t just tired.
I’ve had asthma since I was a kid, so “breathing stuff” was always part of my life. But as I got older, it wasn’t just my lungs. It was fatigue that didn’t match my life. Pain that moved around. GI problems that were hard to explain. Days where I felt like I needed multiple naps just to function…
"It's okay to be grateful for the medical technology that saves you and still hate that you need it."
"It's okay to be grateful for the medical technology that saves you and still hate that you need it."
Browse My Posts
Third Time Through These Doors
There’s something surreal about walking into the same hospital for the third time in a row… not because it’s unfamiliar, but because it’s too familiar.
The Belinda Moment
For Valentine’s Day, my husband and I took a small weekend away to go to a concert. The show wasn’t until Saturday night, so we
When Strength Stops Working
Nothing prepares you for the part of chronic illness where “being strong” stops working. Not the diagnosis. Not the surgeries. Not the endless appointments where
This Is What Endurance Looks Like
Yesterday was a long day. It began before the sun had fully shown up. My body was already awake, already humming with that familiar ache
Between the Dates
I got my feeding tube in November 2019, and I remember thinking I was stepping into a strange, minor detour, not a whole new life.
Hope Folded Small
Right now, I’m writing this from bed. Again. The same spot I’ve been in for most of the last month… the place where time blurs
Browse My Posts
Third Time Through These Doors
There’s something surreal about walking into the same hospital for the third time in a row… not because it’s unfamiliar, but because it’s too familiar.
The Belinda Moment
For Valentine’s Day, my husband and I took a small weekend away to go to a concert. The show wasn’t until Saturday night, so we
When Strength Stops Working
Nothing prepares you for the part of chronic illness where “being strong” stops working. Not the diagnosis. Not the surgeries. Not the endless appointments where
This Is What Endurance Looks Like
Yesterday was a long day. It began before the sun had fully shown up. My body was already awake, already humming with that familiar ache
Between the Dates
I got my feeding tube in November 2019, and I remember thinking I was stepping into a strange, minor detour, not a whole new life.
Hope Folded Small
Right now, I’m writing this from bed. Again. The same spot I’ve been in for most of the last month… the place where time blurs
New Here?
Hello! As a wife and mother of two daughters, I live with a feeding tube, Dysautonomia, and multiple chronic diseases. Here, I share the messy, real, and hopeful moments of juggling marriage, motherhood, and my health. If you need solidarity, tube advice, or understanding, you've come to the right spot.
Dysautonomia Resources
Stop Googling in the dark. Access my curated collection of reliable Dysautonomia guides, patient advocacy links, and support group information to help you manage your health with confidence.
My Toolkit
The gear I swear by. From feeding tube accessories to symptom management tools and my must-have Starbucks drink, browse the things that help me thrive despite the diagnosis.
